Within 12 Months, Everything Changed — A SYNGAP1 Diagnosis Story
1:15
Within 12 Months, Everything Changed — A SYNGAP1 Diagnosis Story
209 views1 month ago
YouTubePollination Media
🐁🔬🧬SYNGAP1 gene's role in cognitive function #neuroscience #genetics #cognitivefunction
0:06
🐁🔬🧬SYNGAP1 gene's role in cognitive function #neuroscience #genetics #cognitivefunction
2.1K viewsFeb 17, 2025
YouTubeScience X
Kai, age 6, has SYNGAP1-related disorder. #RareDisease research helps families like his get support.
0:44
Kai, age 6, has SYNGAP1-related disorder. #RareDisease research helps families like his get support.
1.2K viewsMar 3, 2025
YouTubeKennedy Krieger Institute
CURE SYNGAP1 | SYNGAP1 Stories Episode 41 Short
1:06
CURE SYNGAP1 | SYNGAP1 Stories Episode 41 Short
12 views3 months ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Research Fund
This time last year Toby could only say 5 words.Due to his rare genetic disorder called Syngap1
0:50
This time last year Toby could only say 5 words.Due to his rare genetic disorder called Syngap1
896 views2 months ago
YouTubeThe Trouble With Toby
A Night of Impact for Cure SYNGAP1 💙 My nephew Greyson was diagnosed with SYNGAP1 at just 20 months old, and it has forever changed our family’s lives. SYNGAP1 is caused by a mutation on the SYNGAP1 gene, leading to a lack of SYNGAP protein, which is essential for proper brain function. This night meant so much to us as we came together to raise money and awareness in hopes of finding a cure. A cure for Greyson would mean the world to our family. It would allow us deeper into his world and help
0:33
A Night of Impact for Cure SYNGAP1 💙 My nephew Greyson was diagnosed with SYNGAP1 at just 20 months old, and it has forever changed our family’s lives. SYNGAP1 is caused by a mutation on the SYNGAP1 gene, leading to a lack of SYNGAP protein, which is essential for proper brain function. This night meant so much to us as we came together to raise money and awareness in hopes of finding a cure. A cure for Greyson would mean the world to our family. It would allow us deeper into his world and help
136 views3 months ago
TikToknichole_row3
CURE SYNGAP1 | SYNGAP1 Stories Episode 38 Short
0:50
CURE SYNGAP1 | SYNGAP1 Stories Episode 38 Short
33 views7 months ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Research Fund
0:44
SYNGAP1 razvojna i epileptička encefalopatija 2026
85 views3 months ago
YouTubeDravet Hr
Zeen Mobility Device on Instagram: "🎉 Zeen User of the Month: Kyle 🌟 Kyle is an inspirational young man who is living with rare genetic condition called SYNGAP1. With the Zeen’s secure seatbelt, upright support, and built-in fall protection, Kyle is empowered to safely practice walking, build strength in his legs, and move more freely throughout his home and community. “If it wasn’t for the Zeen keeping him safe,” his mom Kelli shares, “Kyle would not be able to practice independent mobility.”
107.8K views11 months ago
Instagramgo_zeen
2:06
SRF | Why Attend CURE SYNGAP1 Conference, SYNGAP1 Stories Ep 038 Clip
307 views11 months ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Research Fund
2:55
#syngap1 #raredisease #nonverbalautism #epilepsy #specialneeds
6.9K views3 months ago
TikTokmisko_syngap1
1:45
neuveriteľné #syngap1 #nonverbal #specialneeds #autismawareness #epilepsy
13.2K views8 months ago
TikTokmisko_syngap1
0:59
Odpoveď používateľovi @dominika8193 #syngap1 #autismawareness #epilepsy #disabled #care
5.6K views8 months ago
TikTokmisko_syngap1
1:00
One Question That No One Could Ignore
6 months ago
YouTubeThe Advocacy Intelligence Network Shorts
0:59
SRF | SYNGAP1 Stories Episode 37 Short
60 viewsSep 16, 2025
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Research Fund
0:20
SYNGAP1 Synaptic Ras GTPase Activating Protein 1
4 viewsSep 20, 2025
YouTubeStory Lens
0:07
My 2 year old grandson has rare syngap1. Sleep and sensory issues are just some of the minor challenges he faces daily. He’s obsessed with his weighted cow. #weightedplush #weightedblankets #sensoryissues #seperationanxiety #anxietyrelief
64 views4 months ago
TikTokjen.gran
0:51
SRF | Cure SYNGAP1 Conference - Don't Miss Out!
175 viewsSep 7, 2025
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Research Fund
See more
Static thumbnail place holder