Higher levels of the GFAP protein in the cerebrospinal fluid are associated with better clinical response to Spinraza in SMA, ...

Guest writer Joanna Buoniconti wore a mask long before COVID-19, just one of the things she did to not get sick during cold ...

The European Commission has given approval to a high-dose regimen of Spinraza (nusinersen) for people with 5q spinal muscular ...

Columnist Helen Baldwin pays tribute to a late member of the SMA community whose positive impact on the world is immeasurable ...

A Google spreadsheet helps columnist Connie Chandler set the schedule for her caregiving team, who provide her with ...

Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist.

A study tested 38 children with SMA who took part in an eight-week breathing exercise program, with some also engaging their ...

A small molecule known as 10H-phenothiazine reduced the loss of motor neurons, the nerve cells that are lost in SMA, in ...

Alice Wong, a disability rights activist with spinal muscular atrophy who died in November, left behind a legacy of advocacy ...

Evrysdi can stabilize motor function, improve swallowing ability, ease fatigue, and improve life quality for adults with SMA, ...

Changes in motor units closely reflect disease severity in people with spinal muscular atrophy (SMA), suggesting potential ...

Columnist Connie Chandler is often asked how her parents raised two children with SMA, so she decided to find out for herself ...